May 21, 2025 • 6:45 PM
Hi capt,
Welcome to the best board around. I think you’re amazing for being proactive and asking about this before it happens I know we have at least one member, on the board, in a wheelchair and hopefully she’ll respond.
I thought about this for a while, and since I change my appliance sitting on my bed, with my back against my headboard, I’m wondering if you can do that. I sit on a beach towel, have my supplies in a plastic box, and also have a roll of paper towels and a little bit of water in a plastic bowl. The paper towels are to catch any spewing your stoma will do. They’re a little stinkers and have a mind of their own!
When you first get your Ostomy, you can plan on trial and error learning. We will be here for you and we’ll do our best to answer any questions you might have. We’ve all been through those initial stages.
wishing you the best, anyark
May 21, 2025 • 6:54 PM
In reply to anyark-ileo's comment
Thanks, for your response. I also have MS which is why I'm wheelchair-bound and I can't sit up in bed or stand up. So I'll have to change in the wheelchair. On a further question how often do you have to empty your bag initially and then after a couple months?
1 ReactionsMay 21, 2025 • 7:02 PM
In reply to capt100stu's comment
Can you elevate your legs in your W/C? I would think that would be workable. If I had a wheelchair in the house, I would try it myself. That being said, do you have limitations with your MS as far as your arm/hand range of motion and strength go?
We’re all different with how often we have to empty our bags. I have an ileostomy and that may be different than a colostomy. Do you have a catheter or are you able to transfer to a toilet?
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May 21, 2025 • 7:09 PM
In reply to anyark-ileo's comment
Thanks again I'm hope I'm not bothering you too much asking all these questions. I cannot transfer onto a toilet so I will have to empty my bag into a bag. So initially how often did you have to use it have to empty your bag, and if you ever use closed bags versus open bags?
1 ReactionsMay 21, 2025 • 7:14 PM
In reply to anyark-ileo's comment
Thanks for answering my questions, I hope I'm not bothering you too much with this. How often do you have to empty your pouch after you've had it for a couple months, and have you ever tried closed pouches or do you use clothes pouches pros and cons.
2 ReactionsMay 21, 2025 • 11:05 PM
capt, never think you are bothering any of us as you are traveling a new journey. We’ve all been there and we had lots of questions. We are all glad to answer any questions you might have, so forget about asking too many.
I have no memory of how many times I emptied my bag initially or within a few months. My surgery was over 12 years ago I just usually empty mine whenever I go to the bathroom. Depending on what I’ve eaten, and whether it’s liquidy or thicker, it may or may not need emptying more often. You’ll probably get a different answer from each person who responds because we’re all different.
Some people use the closed bag and just put on a new bag while others empty theirs from the bottom like I do. I believe the majority of people use the bag that opens at the bottom. Plus, I very well may empty mine a different number each day.
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May 22, 2025 • 12:53 PM
Hey there, capt and a warm welcome to you! How often you have to empty your bag depends in part on how much colon you have left. For example, if your stoma is made from the sigmoid colon (the very last portion of your colon), most of your colon will still be functional and your bowel habits may not differ that much than they are now. If it’s made higher up in the colon, less of your colon will be functional, so food will pass through it more quickly.
How often you empty can also be influenced by what you eat. Some foods are more thickening and move through your system slower than others. Foods that may thicken are starchy foods like pasta and potatoes, white bread, bananas, fibrous fruits like apples or apples sauce, rice, and peanut butter. Certain medications may cause food to pass through your body faster or slower, as well. Everyone reacts to food differently, so these are just some general guidelines. If you find your output is liquid-like and you’re emptying too often, you can talk to your colorectal surgeon or WOCN about adding Imodium or prescription Lomotil to slow things down.
My last caveat is when your stoma is brand new, it may act very differently than after it’s a month or two old. When my ileostomy stoma was new, it did nothing all day and pooped all night. Luckily, it soon settled down into a more workable rhythm!
May 22, 2025 • 1:05 PM
Is there anyone out there in a wheelchair who has the colostomy, I would really like to converse with that person to find out how hard it is to clean your pouch and to change your pouch.?
2 ReactionsMay 22, 2025 • 1:56 PM
In reply to capt100stu's comment
Hi, although not wheelchair bound, I crushed a vertebrae not long after my colostomy, I used an open mouthed jug, lined with disposal bag and just wiped with kitchen roll. Good luck and stay positive, it can be daunting but you will adapt to it
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May 22, 2025 • 3:41 PM
In reply to Milkmaid66's comment
I am glad for the wheelchair. And thank you for your response. When you used an open mouth jug with a bag were you in the city position when you changed or emptied your bag initially
1 ReactionsMay 23, 2025 • 3:41 PM
I am an ostomy nurse and recently trained a C7 quad to change an ostomy bag BEFORE her surgery, and she is a PRO from the get go. She mastered changing a bag in less than 5 minutes before having a real stoma. I suggest you find someone to teach you BEFORE surgery - it will make your transition much easier. Call the manufacturers and get sample starter kits. Also, I trained her using closed end pouches.
3 ReactionsMay 23, 2025 • 4:15 PM
Chronic menagerie is on the board and she is in a wheelchair. I’m sure she would be glad to chat with you.
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May 24, 2025 • 9:11 AM
In reply to capt100stu's comment
Propted Up on pillows and laying flat on side, not easy but do able
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